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  • Draft Addendum to Advance Health Care Instructions v 8 (addresses cognitive impairment) October 23, 2019
    You may consider adding wording similar to the below to your advance directive ( you DO have one, right ?) if you are concerned about being kept alive with severe cognitive impairment. I am not afraid of death, which will come to us all. However, it is very important to me that I do not ...

  • Dutch doctor acquitted in landmark euthanasia case September 11, 2019
    The issue of advance directives for dementia is a hot topic in the right to die field. In the US there is little legal guidance on this issue. Ethicists argue whether it is ethical to honor these documents once a person has lost legal capacity.  Some say the person that signed them – the “then-self” ...

  • When “do no harm” is no longer textbook July 8, 2019
    by Jim Demaine, Md,, July 7, 2019 A call came about noon a few years ago that a patient I’ll call Stella was being admitted once again. She had come into the ER from her nursing home to receive transfusions. These were now needed every two weeks to keep her alive. The problem was that ...

  • My Time To Die: Nick Ferrari Follows Dementia Patient To Swiss Clinic July 2, 2019
    Leading Britain’s Conversation – July 2, 2019 Every 8 days a briton travels abroad for help to die. An interview with an early onset Alzheimer’s patient and his plans to go to a Swiss clinic to end his life.

  • Her Time March 20, 2019
    By Katie Engelhart, The California Sunday Magazine, March 20, 2019 The story of Debra Koosed who was diagnosed with dementia at 65 and applied to end her life through the Final Exit Network (FEN). After a devastating accident years before, and her husband’s long illnesses, Debra read the terms of the reverse mortgage her husband ...

  • Preparing for Dementia and Avoiding Medically Futile Care November 18, 2018
    Video of HSSD general meeting. A world-renowned expert (ThadPope) on many areas of health law & bioethics speaks about options and limitations for persons suffering from dementia.

  • Still AliceStill Alice February 19, 2017
    The story of a young professor who develops early onset Alzheimer’s. What would you do? How would your family react? What if you could no longer keep your job? Would you try to take your life? How? How can you make sure it would work?

  • Force-Feeding: Cruel at Guantánamo, but O.K. for Our Parents November 24, 2015
    By Haider Javed Warraich, New York Times Nov. 24, 2015 Many late-stage dementia patients develop difficulties in swallowing and frequently aspirate food or other stomach contents into their lungs, developing pneumonia. “Study after study, however, has shown that tube feeding doesn’t provide any benefit compared with feeding these patients by hand, which is more ...

  • Dead at noon: Gillian Bennett’s last wish was to get people talking about a taboo topic August 25, 2014
    By Denise Ryan, Vancouver Sun Gillian Bennett’s final words on her personal website make a passionate case for physician-assisted suicide. On Monday morning shortly before noon, Gillian Bennett dragged a foam mattress from her home on Bowen Island to one of her favorite spots on the grass, facing a craggy rock cliff, the place she had chosen to die. Bennett, who was ...

  • Sorrows of Dementia Don’t Get Easier Over Time August 5, 2014
    By Logan Jenkins, Union Tribune, Aug 5, 2014. And Response by Faye Girsh, Ed.D., President of the Hemlock Society of San Diego The first column I ever wrote for money was about my grandmother slipping away in the back bedroom of my family’s Coronado home. The Iranian hostage crisis ruled the news. And I was learning a ...

  • What Broke My Father’s Heart June 18, 2010
    By Katy Butler, New York Times Magazine, June 18, 2010 This article was an influential article and prompted two excellent books by Katy Butler, Knocking on Heaven’s Door: The Path to a Better Way of Death, 2013 and The Art of Dying Well: A Practical Guide to a Good End of Life 2019. The 2013 book ...

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